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Chapter 12

Genetics of Metabolism

135

t a b l e

12-6

Metabolic Genetic Disorders Involving Degradation Pathways

Gene/Gene Product 

Accumulation

Genetic Disorder

Chromosome

Product

Clinical Features

Mucopolysaccharidosis 

IDUA gene/a-L-iduronidase

Heparan sulfate

Infants initially appear normal up to 

type I (Hurler , Hurler-

4p16.3

Dermatan sulfate

9 months of age but then develop 

Scheie, or Scheie 

symptoms; coarsening of facial features, 

syndromes)

thickening of alae nasi, lips, ear lobules, 
and tongue; corneal clouding; severe
visual impairment; progressive thickening
heart valves leading to mitral and aortic 
regurgitation; dorsolumbar kyphosis; 
skeletal dysplasia involving all the bones;
linear growth ceases by 3 years of age; 
hearing loss; chronic recurrent rhinitis; 
severe mental retardation; and zebra 
bodies within neurons.

Gaucher disease

GBA gene/

-

Glucosylceramide

Bone disease (e.g., focal lytic lesions, 

glucosylceramidase

Other glycolipids

sclerotic lesions, osteonecrosis) is the 

1p21

most debilitating pathology of Type I GD;
hepatomegaly; splenomegaly; cytopenia
and anemia due to hypersplenism, 
splenic sequestration, and decreased 
erythropoiesis; and pulmonary disease 
(e.g., interstitial lung disease, alveolar/
lobar consolidation; pulmonary 
hypertension); no primary CNS 
involvement. 

Hexosaminidase A 

HEXA gene/

GM2 ganglioside

Infants initially appear normal up to 

deficiency (Tay-Sachs)

hexosaminidase 

3–6 months of age but then develop 

a-subunit 

symptoms; progressive weakness and 

15q23-q24

loss of motor skills; decreased 
attentiveness; increased startled 
response; a cherry red spot in the
fovea centralis of the retina; generalized 
muscular hypotonia; later, progressive 
neurodegeneration, seizures, blindness, 
and spasticity occur followed by death 
at 

2–4 years of age. 

Mucopolysaccharidosis 

IDS gene/iduronate

Heparan sulfate

Dysostosis multiplex (thickened skull,

type II 

2-sulfatase

Dermatan sulfate

anterior thickening of ribs, vertebral 

(Hunter syndrome)

Xq27.3-q28

abnormalities, and short/thick long 
bones), coarse face, hepatosplenomegaly,
mental retardation, and behavioral 
problems.

Mucopolysaccharidosis 

SGSH gene/sulfatidase

Heparan sulfate

Dysostosis multiplex (thickened skull,

type III A (Sanfilippo 

17q25.3

anterior thickening of ribs, vertebral 

A syndrome)

abnormalities, and short/thick long 
bones), mental retardation, and 
behavioral problems (aggressive 
behavior followed by progressive 
neurological decline). 

Mucopolysaccharidosis 

GALNS gene/N-

Keratan sulfate

Short stature, bony dysplasia, and hearing 

type IV A (Morquio A 

acetylgalactosamine-

Chondroitin-6-

loss.

syndrome)

6-sulfate sulfatase

sulfate

16q24.3

Niemann-Pick type 1A 

SMPD1 gene/acid 

Sphingomyelin

Hepatosplenomegaly, feeding difficulties, 

disorder

sphingomyelinase

and loss of motor skills is seen within 

11p15

1–3 months of age; a cherry red spot 
in the fovea centralis of the retina; later, 
a rapid, profound, and progressive 
neurodegeneration occurs followed by 
death at 

2–3 years of age.

(continued)

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136

BRS Genetics

FIGURE 12-1. (A1, A2, A3) Glycogen storage disease type I (von Gierke). (A1)

Photograph shows a boy 13 years of age with

von Gierke disease. Note the enlarged abdomen. (A2) Light micrograph of a liver biopsy shows hepatocytes with a pale,
clear cytoplasm due to the large amounts of accumulated glycogen that is extracted during histological processing. (A3)
Electron micrograph of a liver biopsy shows hepatocytes filled with glycogen aggregates. (B) Glycogen storage disease
type V (McArdle).

Light micrograph of a skeletal muscle biopsy shows muscle cells with a pale, clear cytoplasm due to the

large amounts of accumulated glycogen that is extracted during histological processing. (C) Maple syrup urine disease.
T2-weighted MRI shows hyperdensity in the brain stem (arrows) indicating neurological deterioration. (D1, D2) Familial
hypercholesterolemia (D1)

Photograph shows xanthomas on the dorsum of the hand. (D2) Photograph shows arcus

lipoides, which represents the deposition of cholesterol around the cornea of the eye. (E) Wilson disease. Photograph
shows a Kayser-Fleischer ring (arrows) caused by the deposition of copper in Descemet membrane and thereby obstructs
the view of the underlying iris. (F) Hemochromatosis. Light micrograph of a liver biopsy stained with Prussian blue shows
hepatocytes with a heavily stained cytoplasm to the large amounts of accumulated iron. (G) Mucopolysaccharidosis type
I (MPS I; Hurler syndrome).

Photograph shows an infant with coarsening of facial features; thickening of alae nasi, lips,

ear lobules, and tongue; dorsolumbar kyphosis; and skeletal dysplasia involving all the bones. (H) Gaucher disease. Light
micrograph of a bone marrow aspirate smear shows the typical Gaucher cells with an abundant cytoplasm filled with fib-
rillarlike material. (I) Tay-Sachs disease. Electron micrograph shows central nervous system neurons filled lysosomes
(Lys) containing whorls of membranelike material due to the large amounts of accumulated GM2 ganglioside. N 

 nucleus

of neuron.

t a b l e

12-6

(continued)

Gene/Gene Product 

Accumulation

Genetic Disorder

Chromosome

Product

Clinical Features

Fabry disorder

GLA gene/a-

Globotriaosyl-

In classically affected males, symptoms

galactosidase A

ceramide

begin in childhood or adolescence; 

Xq22

severe neuropathic or limb pain 
precipitated by stress, extreme heat or
cold, and physical exertion;
telangiectasias, angiokeratomas in the
groin, hip, and periumbilical regions; 
asymptomatic corneal deposits; retinal 
vascular tortuosity; in adulthood, end 
stage renal disease, cardiac involvement,
and cerebrovascular involvement leading
transient ischemic attacks and strokes.

Krabbe disorder

GALC gene/

Galactosylceramide

Developmental delay, limb stiffness,

galactocerebrosidase

hypotonia, absent reflexes, optic atrophy,

14q31

microcephaly, and extreme irritability
within 1–6 months of age; later, seizures
and tonic extensor spasms associated 
with light, sound, or touch stimulation 
occur; a rapid regression to the 
decerebrate condition followed by death
at 

2 years of age.

Metachromatic 

ARSA gene/

Cerebroside sulfate

Regression of motor skills, gait difficulties, 

leukodystrophy

arylsulfatase A

ataxia, hypotonia, extensor plantar

22q13.3-qter

responses, and optic atrophy within 
6 months to 2 years of age; later, 
peripheral neuropathy occurs followed 
by death at 

5–6 years of age; 

metachromatic lipid deposits in neurons 
is pathognomic

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Chapter 12

Genetics of Metabolism

137

A1

A2

A3

E

F

G

C

B

H

I

Lys

N

D1

D2

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138

1.

In metabolic genetic diseases, heterozy-

gotes are generally normal. Which of the fol-
lowing is the most likely explanation for this
observation?

(A)

Heterozygotes have compound muta-
tions.

(B)

Heterozygotes produce enough enzymes
for normal metabolic function.

(C)

Heterozygotes produce defective
enzymes that are repaired by the normal
allele.

(D)

Heterozygotes produce defective
enzymes that are spliced to normal
enzymes.

2.

In hereditary hemochromatosis, some

affected individuals are not homozygous for
either of the two common mutations, C282Y
and H63D, which cause the disease. Which
one of the following causes the disease in
these individuals?

(A)

high hepatic concentration of copper

(B)

heterozygosity for C282Y

(C)

heterozygosity for H63D

(D)

compound heterozygosity for the two
common mutations

3.

Familial hypercholesterolemia is caused

by which one of the following?

(A)

autosomal recessive inheritance of a
mutation in the LDL receptor gene

(B)

homozygosity or heterozygosity for a
mutation in the LDL receptor gene

(C)

a mutation in the mitochondria

(D)

multifactorial inheritance

4.

Most genetic metabolic diseases are

caused by mutations in which one of the 
following?

(A)

mitochondrial genes

(B)

DNA repair genes

(C)

genes that code for structural proteins

(D)

genes that code for enzymes

5.

Which of the following is a genetic meta-

bolic disease involving degradation path-
ways?

(A)

glycogen storage disease

(B)

maple syrup urine disease

(C)

mucopolysaccharidosis

(D)

galactosemia

Review Test

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1. The answer is (B).

Because most metabolic diseases are inherited in an autosomal recessive

fashion, heterozygotes have a normal allele and usually produce enough enzymes for nor-
mal metabolic function. 

2. The answer is (D).

Heterozygotes for either C282Y or H63D are normal, but when both

mutations are present in the heterozygous state in an individual that individual is affected.
This is called compound heterozygosity. 

3. The answer is (B).

Familial hypercholesterolemia is caused by autosomal dominant inheri-

tance of a mutation in the low density lipoprotein receptor (LDLR) gene. Because it is an
autosomal dominant disease, both heterozygous and homozygous individuals are affected.
Most cases of hypercholesterolemia in the population are multifactorial in origin. 

4. The answer is (D).

Metabolic reactions within biochemical pathways require enzymes to

facilitate the reactions. Most metabolic diseases are caused by mutations in the genes that
encode the enzymes in a biochemical pathway. 

5. The answer is (C).

Mucopolysaccharidosis is due to lysosomal enzyme deficiencies that

result in the lack of complete degradation of glycosaminoglycans, resulting in the buildup of
incomplete degradation products in cells.

139

Answers and Explanations

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