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150

BRS Genetics

t a b l e

14-2

Summary Table of Bleeding Disorders

Genetic Disorder

Gene/Gene Product Chromosome

Clinical Feature

Hemophilia A

Hemophilia B

von Willebrand 

Disease 

F8 gene/factor VIII

Xq28

F8 intron 22-A gene inversion 

(“flip” inversion) most com-
mon mutation

Reduced factor VIII clotting 

activity

F9 gene/ factor IX

Xq27.1-q27.2

Wide variety of mutations
Reduced factor IX clotting 

activity

VWF gene/ von Willebrand factor

12p13.3

Wide variety of mutations
Reduced synthesis or functional-

ity of vWF

Severe hemophilia A:

Usually diagnosed before 1 year of age;

prolonged oozing after injuries; renewed bleeding after initial
bleeding has stopped; delayed bleeding; large “goose eggs”
after minor head bumps; abnormal bleeding after minor
injuries; deep muscle hematomas; episodes of spontaneous
joint bleeding are frequent; and 2–5 spontaneous bleeding
episodes/month without adequate treatment. 

Moderately severe hemophilia A:

Usually diagnosed before 5–6

years of age; prolonged oozing after injuries; renewed bleed-
ing after initial bleeding has stopped; delayed bleeding; abnor-
mal bleeding after minor injuries; episodes of spontaneous
joint bleeding are rare; and 1 bleeding episode/month 

1

bleeding episode/year.

Mild hemophilia A:

Usually diagnosed later in life; prolonged

oozing after injuries; renewed bleeding after initial bleeding
has stopped; delayed bleeding; abnormal bleeding after major
injuries, episodes of spontaneous joint bleeding are absent;
and 1 bleeding episode/year 

1 bleeding episode/10 years.

Severe hemophilia B:

Usually diagnosed before 1 year of age;

prolonged oozing after injuries; renewed bleeding after initial
bleeding has stopped; delayed bleeding; large “goose eggs”
after minor head bumps; abnormal bleeding after minor
injuries; deep muscle hematomas; episodes of spontaneous
joint bleeding are frequent; and 2 to 5 spontaneous bleeding
episodes/month without adequate treatment. 

Moderately severe hemophilia B:

Usually diagnosed before 5 to

6 years of age; prolonged oozing after injuries; renewed bleed-
ing after initial bleeding has stopped; delayed bleeding; abnor-
mal bleeding after minor injuries; episodes of spontaneous
joint bleeding are rare; and 1 bleeding episode/month 

1

bleeding episode/year.

Mild hemophilia B:

Usually diagnosed later in life; prolonged

oozing after injuries; renewed bleeding after initial bleeding
has stopped; delayed bleeding; abnormal bleeding after major
injuries; episodes of spontaneous joint bleeding are absent;
and 1 bleeding episode/year 

1 bleeding episode/10 years.

Type 1 VWD:

Can be diagnosed at any age; lifelong easy bruising;

nose bleeding (epistaxis); skin bleeding; prolonged bleeding
from mucosal surfaces; heavy menstrual bleeding; and mild to
moderately severe bleeding symptoms while some patients
are asymptomatic. 

Type 2 VWD:

can be diagnosed at any age; lifelong easy bruising;

nose bleeding (epistaxis); skin bleeding; prolonged bleeding
from mucosal surfaces; heavy menstrual bleeding; and moder-
ate to moderately severe bleeding.

Type 3 VWD:

Nose bleeding (epistaxis); severe skin bleeding;

severe bleeding from mucosal surfaces; muscle hematomas;
and severe joint bleeding.

V. SUMMARY TABLE OF BLEEDING DISORDERS (Table 14-2)

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1.

Reduced factor VIII clotting activity with

normal von Willebrand factor is a finding in
which one of the following?

(A)

von Willebrand disease

(B)

hemophilia B

(C)

Christmas disease

(D)

hemophilia A 

2.

A gene inversion, called a “flip” inversion,

is the most common mutation in which one
of the following?

(A)

hemophilia A

(B)

hemophilia B

(C)

von Willebrand disease

(D)

Christmas disease 

3.

Which one of the following inherited

bleeding disorders is autosomal dominant?

(A)

hemophilia A

(B)

hemophilia B

(C)

von Willebrand disease

(D)

Christmas disease

4.

The bleeding disorder that is most likely

to be asymptomatic is which one of the fol-
lowing?

(A)

hemophilia A

(B)

hemophilia B

(C)

Type 1 von Willebrand disease

(D)

Type 3 von Willebrand disease

5.

The most common bleeding disorder is

which one of the following?

(A)

hemophilia A

(B)

hemophilia B

(C)

von Willebrand disease

(D)

Christmas disease

151

Review Test

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152

Answers and Explanations

1. The answer is (D).

Hemophilia A is caused by a mutation in the F8 gene for coagulation fac-

tor VIII.

2. The answer is (A).

An F8 intron gene inversion, called a “flip” inversion, is responsible for

the majority cases of hemophilia A.

3. The answer is (C).

Von Willebrand disease is the most common inherited bleeding disorder.

4. The answer is (C).

The bleeding disorder most likely to be asymptomatic is Type 1 von

Willebrand disease because there is von Willebrand factor present but in reduced amounts. 

5. The answer is (C).

The most common inherited bleeding disorder is von Willebrand disease,

but only a small number of patients come to medical attention because of symptoms.

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c h a p t e r

15

Genetics of Development

153

t a b l e

15-1

Causes of Human Birth Defects

Causes

Percentage

Unknown factors

45%

Multifactorial inheritance (environmental and genetic causes combined)

25%

Chromosome abnormalities (numerical or structural)

10%

Mendelian single gene inheritance

5%

Teratogen exposure

5%

Uterine factors (e.g., oligohydramnios, uterine fibroids)

3%

Twinning 

1%

I. CAUSES OF HUMAN BIRTH DEFECTS (Table 15-1)

II. TYPES OF HUMAN BIRTH DEFECTS

A. Malformation (genetic based).

A morphological defect caused by an 

intrinsically abnormal

developmental process

. Intrinsic implies that the developmental potential of the primordium

is abnormal from the beginning (e.g., a chromosome abnormality of a gamete at fertiliza-
tion). A malformation occurs during the embryonic period (weeks 3 to 8 of gestation) when
all major organ systems begin to develop (i.e., organogenesis). Malformation may also be
due to nutritional deficiencies (e.g., lack of folate in neural tube defects). Malformation
examples include: polydactyly, oligodactyly, spina bifida, cleft palate, and most kinds of con-
genital heart malformations.

B. Dysplasia (genetic based).

A morphological defect caused by an 

abnormal organization of cells

into tissues.

A dysplasia occurs during the embryonic period (weeks 3 to 8 of gestation) when

all major organ systems begin to develop (i.e., organogenesis). Dysplasia examples include:
thanatophoric dwarfism and congenital ectodermal dysplasia.

C. Disruption (not genetic based).

A morphological defect caused by the breakdown of or inter-

ference with an intrinsically normal developmental process. A disruption occurs at any time
during gestation. Disruption examples include: bowel atresia due to vascular accidents,
amniotic band disruptions, and most cases of porencephaly (cystic lesions of the brain). 

D. Deformation (not genetic based).

An abnormality of form or position of a body part caused by

mechanical forces that interfere with normal growth or position of the fetus in utero. A
deformation occurs usually in the second and third trimester of the pregnancy. Deformation

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154

Board Review Series Genetics

examples include: abnormal position of the feet, clubfoot, and abnormal moulding of the
head.

III. PATTERNS OF HUMAN BIRTH DEFECTS

When a patient presents with multiple birth defects, the following patterns may be 
presented:

A. Sequence.

A pattern of multiple defects derived from a single known or presumed structural

defect or mechanical factor. Sequence examples include Robin sequence and oligohydram-
nios sequence.

B. Syndrome.

A pattern of multiple defects all of which are pathogenetically related. In clinical

genetics, “syndrome” implies a similar cause in all affected individuals. Syndrome examples
include Down syndrome, fetal alcohol syndrome, and Marfan syndrome. 

C. Polytopic Field Defect.

A pattern of multiple defects derived from the disturbance of a single

developmental field. Developmental fields are regions of the embryo that develop in a
related fashion although the derivative structures may not be close spatially in the infant or
adult. Polytopic field defect examples include holoprosencephaly.

D. Association.

A pattern of multiple defects that occurs more often than expected by chance

alone (i.e., nonrandom) but has not yet been classified as a sequence, syndrome, or poly-
topic field defect. As development genetics advances, many associations will very likely be
reclassified as a sequence, syndrome, or polytopic defect. Association examples include
abnormal ears associated with renal defects; single umbilical artery associated with heart
defects; and, the association of vertebral, heart, and kidney defects. 

IV. DETERMINATION OF THE LEFT/RIGHT (L/H) AXIS

L/R axis determination is established early in embryological development and is caused by a
cascade of paracrine signaling proteins. 

A.

L/R axis determination begins with the asymmetric (future left-side) expression of the signal-
ing protein 

Sonic hedgehog (Shh) protein

from the notochord, which is located in the midline. 

B.

This results in the expression of the signaling protein 

nodal protein 

(a member of the TGF-

family) only on the left side of the embryo (left side 

 nodal positive; right side  nodal neg-

ative) and may be the earliest event in L/R axis determination. 

C.

After the L/R axis is determined in the embryo, the L/R asymmetry of a number of anatomi-
cal organs (e.g., heart, liver, stomach) can then be patterned under the influence of the tran-
scription factor 

zinc-finger protein of the cerebellum (ZIC3)

D.

Clinical consideration:

Primary Ciliary Dyskinesia (PCD; or Immotile Cilia Syndrome)/

Kartagener Syndrome.

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